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Lemon-Aid
Hello Friends, I finally have a minute to give you an update. Lulu is getting a blood transfusion at the hospital, and after getting some Benadryl, is heading off to what I hope will be a nap. It’s...
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Reaching Bittersweet Maintenance
, Hello Friends, It always feels difficult to get started on these entries, but once the words begin to come, they do seem to pour out. Today, I’ll start where I finished last; the lemon-aid stand. I...
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Update and Lemon-Aid tomorrow
Hello, Just a quick update today. We will be doing another lemon-aid stand at our church, all proceeds go to childhood cancer research: Sunday (tomorrow) July 15 from 11-1. To donate to Love for...
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An eventful day
Yesterday turned out to be an eventful day. I got a phone call from my Dad, who had gone back home for a while. He told us his wife’s granddaughter, Kaylee, had been severely burned in a campfire...
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No news is GREAT news!
Hello patient Friends! It’s been a whirlwind lately, and I feel like a Tazmanian devil! – a whirling dervish of new life is unfolding with camps, activities, work, change, new med schedules, work,...
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Lulu describes … (recording)
http://chirb.it/MHh6LN Click on the link above to hear a recording of Lulu Recording transcribed: “His nose is a flower, and I think that his legs are tree trunks, and I think that his arms are...
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Bo Johnson article: Teaching us How to Live
Hello Friends, Lulu had another lemon-aid stand today at our church. We are so proud of our little one for inspiring these donations. We will do exact calculations, but we should have close to $3000...
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Go Bo.
Hello Friends, Bo lost his brave battle with leukemia very early this morning. Although he has left us, his spirit has not. The Go Bo Foundation will continue to grow and carry out his wish to cure...
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Lulu and “The Biebs”
Hello Friends, Yes, it really is Justin Bieber, “The Biebs” in the pic with us. There’s quite a story behind this pic that I thought I’d share with you: We have a friend, Neil, who is very well...
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Lulu’s journey through pictures
Today marks one year since Lulu’s diagnosis. I found it too difficult to put the year into words, so I’m wrapping it up in pictures, and Lulu’s art. Thank you to the staff at Children’s Hospital, who...
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Lulu’s cameo in a music video
Lulu has a cameo in the end of this music video (click on link below). The This Time Tomorrow Foundation has been a wonderful supporter of Lulu, and other children with cancer. We are honored to have...
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Carrot Juice or Chemo?
They say there are two things you should never talk about at the dinner table: politics and religion. I beg to differ. I’d argue that food has become almost as controversial as politics or religion....
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To my Big Boy on Thanksgiving
Hello on this special holiday! There are so very many things to be thankful for this year. But I’m dedicating this Thanksgiving to my son, who sits by the sidelines while his sister receives positive...
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A Little Nitty Gritty
Hello Friends, I’ve been writing about a lot of the bigger picture lately, so this update will cover some of the details on Lulu and the family. Although she’s still doing well overall, we’ve had a...
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Silver Lining (plus recording of Lulu singing)
Hello Friends, Since my last entry, Lulu’s counts dropped even lower, which was unexpected. We had taken her off of her daily chemo, but she was still getting Bactrim two days a week and methotrexate...
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Calling of the Heart
Hello Friends, I have to share something with you this week. It’s not my story. Well, it is … but it isn’t. I’m so touched by the friendship I’ve found through a fellow blogger. I didn’t expect it, but...
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Highlights (mostly!)
Hello Friends! Wow, it’s been a while since my last entry. Thanks for your patience. I’ll hit the highlights and lowlights to catch you up to speed. Luckily, this will contain mostly the former! We...
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What if … ?
Hello Friends, I’m very excited to write to you today. I have a big announcement to make! I am finally sharing my children’s picture book “The What If Book”. I use the word finally, because this...
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Jazz Hands
(pic from a.m. rehearsal) “Begin doing what you want to do now. We are not living in eternity. We have only this moment, sparkling like a star in our hand – and melting like a snowflake. Let us use it...
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Standing in the sun
It’s like standing in the sun, feeling the healing warmth of it, when someone grabs you by the back of the neck and throws you into a meat locker. But now this place has become familiar. You’ve...
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