Clik here to view.
Out Like a Lion …
(pic above: our 2-year holiday card) Out like a Lion … 2013 left us with a microcosm of the ups and downs of the year wrapped up in one day. Looking back, it seems fitting … but I’m glad that it’s...
View ArticleClik here to view.
So Close and Yet So Far
We’re SO close to the end, less than 4 more weeks of therapy, which makes the events of this last week that much harder. Since I always like to get the bad news out of the way first, I’ll start with...
View ArticleClik here to view.
Quick update
Hello Friends, Just a quick update to let you know all went well with the Immunoglobulin transfusion! Besides a horrific tantrum that came out of nowhere (caused by combo of bad reaction to benadryl...
View ArticleClik here to view.
Counting Down!
One week from today is Lulu’s LAST dose of chemo! 5 days after will be her port removal and hernia surgery. WOW, It’s really almost here. I wish I could report an uneventful week, but never a dull...
View ArticleClik here to view.
Nearing the Finish Line
Hello Friends, I just had to post again as I vacillate between giddy delight and emotional overwhelm. It feels like we’re all just holding our breath … unbelieving that it’s really almost here: MARCH...
View ArticleClik here to view.
Lulu Rings The Bell!!!
Hello Dear Friends, At last, the day finally came and our little warrior princess got to ring THE BELL! I wish i had more energy to write about the incredible day yesterday, but if a picture is worth...
View ArticleClik here to view.
Full Circle
(pic above, car ride to the Hospital for Lulu’s surgery) Full Circle http://chw.wistia.com/medias/1ebjs89ldn (Bell Ringing Full version- Professional Video from Children’s Hospital) Today was a big...
View ArticleClik here to view.
Paying it Forward
Hello Friends! I wanted to share a very special blog entry I co-wrote with my 11-year old son for Children’s Hospital of Wisconsin (link below). Lulu has become the ‘face’ of the Miracle Marathon for...
View ArticleClik here to view.
Miracle Marathon video and letter
http://fox6now.com/2014/05/22/find-out-how-you-can-help-childrens-hospital-of-wisconsin/ Hello Friends, As we reach the last few hours of Miracle Marathon, I wanted to share a tv interview we did with...
View ArticleClik here to view.
A Little Bit Of Courage
Hello Friends, Jul 19, 2014 1:05 PM Hello Friends, I know firsthand, from writing about our journey so publicly, that it’s not always easy to press that ENTER button… There have been many times I’ve...
View ArticleClik here to view.
Tootsies and Trips
This morning began with foot in mouth. I’m not speaking figuratively; said something stupid, embarrassed myself or someone else … I’m talking 5 tiny pink painted toenails inserted ever-so-gently inside...
View ArticleClik here to view.
“Rise”
I am with Lulu at Children’s this week for more treatment. She’s been the life of the party here, and hosted her own rainbow fiesta at rounds this a.m. One of our favorite docs brought supplies for her...
View ArticleClik here to view.
Seeing is believing
I have two crazy stories to tell you this week. Crazy good, with crazy-amazing moments … The first story came out of the blue: I have to take Lulu into Children’s for bloodwork weekly, and put...
View ArticleClik here to view.
Normal is underrated
Normal. It’s a word I’ve never really identified with. Growing up as an overachiever of grand proportions, I’ve always shied away from words such as this. I’ve never aspired to flirt with Normal, or...
View ArticleClik here to view.
Dun Dun Duuuuuhnnnn . . . Delayed intensification.
We just began the toughest round of chemo for Lulu yesterday. There’s a reason for the name: Delayed Intensification. It’s just loaded with all the ingredients for an intense drama including 9...
View ArticleClik here to view.
Unexpected Kudos
Hello Friends, As I was responding to the comments readers had made on my blog this week, I was delighted and surprised to find this: “It’s an odd little community of bloggers–those of us on-line...
View ArticleClik here to view.
Presenting …. The Amaaazing Lulu!
Lulu. She’s amazing to me. She’s been hanging so tough this last couple of weeks. Although this round has been better than expected so far, it hasn’t been easy on a little 5-year old. She’s taught...
View ArticleClik here to view.
Radio interview with Lulu
Many of you have asked to hear the recording Lulu and my husband did for Children’s Hospital, so here it is in all it’s beauty. I’m SO proud of them both. Lulu’s voice dapples sunlight throughout,...
View ArticleClik here to view.
Allowing Abundance in
Hi Friends, Thanks for your patience; this week has been incredibly busy! There’s so much good stuff happening that I’m trying to be conscious of allowing it in, not questioning it, or feeling...
View ArticleClik here to view.
Lulu’s Ad
Here it is! We are so proud of our little firecracker. Yes, she is Spirited indeed … We are a bit in the weeds this week, but I will write asap! She’s doing pretty well, and we are all hanging in …...
View Article